Archive for the 'Diagnosis Updates and News' Category

Keeping Up to Date with Terminology

Thursday, July 30th, 2009

 

We have updated our booklet on mental retardation. In keeping with current usage, we have changed it to intellectual disability.

The introduction to Including Students with Intellectual Disability reads:

Every person, regardless of age, sex, race, mental or physical capacity, deserves to know the love the Father has lavished upon us. We in His church have been given the responsibility of insuring that all people receive the opportunity to experience this great love. Whether teaching a young child who lives with her family and is part of the public school system or an adult living in a residential facility and working in supported employment, he/she can learn about the love of our wonderful Lord. We pray that this booklet will provide you with useful information about intellectual disability and give practical suggestions for making your teaching effective.

The terminology used in describing persons with mental retardation has changed often over the last several years. Most of the changes have been toward a kinder more sensitive word choice. Today, it is common to hear it said that a person has an intellectual disability or cognitive disability rather than using mental retardation. While the terms describe the same disability, in this booklet we will use intellectual disability. If mental retardation is used, it will be in a direct quotation from a published work. We urge people who continue to use mental retardation to do so with respect and kindness to the person and his family.

No matter what the label is, the important thing is to learn how the child is affected by the disability, how to appropriately program for him and to show the love of God to the student and the family

Helpful information about intellectual disability
• It is not a disease. It cannot be caught.
• It is not mental illness.
• It is permanent. The child will not grow out of it.

These few facts are important for you to know. Your ability to be comfortable with the child in your class who has an intellectual disability will be conveyed to the other students by your attitude, words, and deeds. Take time to explain these three facts to children in your class using words they understand. The more they understand about intellectual disability, the better equipped they are to become friends and encouragers for their new friend with an intellectual disability.

The student with an intellectual disability has the capacity to learn, to develop, and to grow. He can make a positive impact on his family, community, and your class.

The updated publication is available in our Online Store at www.ccfh.org.

"Autism Speaks" Keeps You Up-to-Date

Thursday, June 12th, 2008

By Jim Pierson

As a college special education teacher, I have been amazed at the change in our awareness and knowledge about autism. One amazing statistic is the number of cases. When I started teaching, I told my students that 2 to 4 in every 10,000 births would have autism. Today the number is one in 150. It was considered a rare disease—not any more. Autism has become a household word. News outlets provide a steady stream of human interest stories, teaching methods, research findings. It is difficult to keep up with what is going on in the world of autism.

Here at CCFH Ministries our interest is providing information to assist church staff members and volunteers in their efforts to share the Gospel with people who have disabilities.

100 Day Kit

Autism SpeaksTM (website: www.autismspeaks.org) is a fairly new organization on the scene but it provides a lot of current, timely information. Their stated goal is “to change the future for all who struggle with autism spectrum disorders.” Autism SpeaksTM funds research, finds causes, raises awareness, works on prevention, wants to bring the autism community together, and the goal that warms my heart, offer hope to the people and their families that deal with autism.

Autism SpeaksTM Family Services has produced The Autism SpeaksTM 100 Day Kit, available on their website. Click the Community tab and then Family Services.

While its intended audience is newly diagnosed families, it has excellent information that would help a church volunteer better understand the world and language of autism. The document is in PDF and is available to you free. When you study the Kit, the first 41 pages will be especially helpful. I made some notes as I read through the material that will provide a guide as you read the Kit.

  1. The information about autism is current.
  2. The reader will understand the process a family goes through to get a diagnosis.
  3. The terms a family uses when talking about autism will be evident.
  4. The causes of autism are stated fairly.
  5. The symptoms of autism are listed.
  6. The parents’ reactions and feelings with a diagnosis of autism are important to know.
  7. The section on Caring for the Caregiver will give churches ideas how to help parents.
  8. The influence autism has on the entire family is clear.
  9. The process and nature of the assistance and special services for the child with autism are listed.
  10. The terms used in special education are defined.
  11. The abbreviations used for the treatments of autism will make understanding what the family is talking about easier. Consider ABA (Applied Behavioral Analysis). PRT (Pivotal Response Treatment), VB (Verbal Behavior), DIR (Floortime), RDI (Relationship Development Intervention), TEACCH (Training and Education of Autistic and Related Communication Handicapped Children), SCERTS (Social Communication/Emotional Regulation/Transactional Support).
  12. The most common services used in the treatment of autism are explained: Speech-Language therapy, Occupational Therapy, Sensory Integration Therapy, Physical Therapy, Auditory Integration Therapy, Gluten Free, Casein Free Diet, and Picture Exchange Communication System (parents will say PECS).
  13. The section on keeping the child safe will have beneficial ideas for the church to consider will the child is in its care.
  14. The sections on suggested reading materials and Websites will expand the information.
  15. The “Ten Things Every Child with Autism Wishes You Knew” will make the volunteer related with more sensitivity to the person with autism.
  16. The ideas for meaningful play would help in a church Christian education program.
     

The remaining pages have an outline for what to do each week as they deal with the diagnosis of autism. There are also forms for the parents to use.

I hope you find the use of Autism SpeaksTM Family Services 100 Day Kit a good tool for understanding the world of autism a family whose child attends your Christian education program experiences every day.

A Suggestion

Autism SpeaksTM provides the latest in information about autism. Go to their Homepage and click on “In the news.”

Early Onset Schizophrenia

Wednesday, September 26th, 2007

Click the link below to read Jim Pierson’s article about a family living with this diagnosis and his suggestions for a congregation. 

Childhood Schizophrenia: How A Congregation Can Help